Thursday, April 24, 2008

Cystic Fibrosis Foundation's Pipeline to a Cure

Hey Gang,

My friends that are associated with the Cystic Fibrosis Foundation sent over some cool stuff about a Black-Tie and Flip-Flop benefit dinner for the CF Foundation.

Apparently they have put together a big Gala (faaabulous!) Event together that will be at the Hyatt in Huntington Beach this sounds like a good time for a good cause.

If you aren't that familiar with Cystic Fibrosis here is a video that can get you up to speed. It actually features a local SoCal surfer named Emily...

Here are the details on the release from CF Foundation.

We are pleased to announce that plans are underway for PACSUN’S PIPELINE TO A CURE Dinner Gala benefiting the Cystic Fibrosis Foundation, scheduled for Saturday, July 19, 2008 at the Hyatt Regency Huntington Beach, California. This black tie and flip flop gala will be recognizing the positive effect that surfing has on the lung health of children with cystic fibrosis. We are thrilled to join with the Cystic Fibrosis Foundation, our title sponsor PACSUN, Honorary Co-Chairmen Laird Hamilton and David Kalama and the Kelly Slater Foundation in this inaugural event.

PIPELINE TO A CURE is a fundraising campaign which recognizes the remarkable connection between surfing and this deadly genetic disease. One of the serious effects of cystic fibrosis is the production of thick sticky mucus which clogs the lungs and leads to life threatening lung infections. In recent years, doctors in Australia identified surfers with cystic fibrosis having significantly healthier lungs than their non surfer patients. While many surfers have long known the positive health effects of saltwater on the sinuses, it is simply amazing that saltwater mist has a direct positive effect on the lungs of CF patients. Doctors have since developed a breathing treatment called Hypertonic Saline Solution which helps cystic fibrosis patients eliminate this bacteria laden mucus. This new therapy daily mimics a “surf session” for the lungs of those who suffer from cystic fibrosis.

We would like to extend to you an incredible opportunity to support this event by participating as a sponsor, attendee or donating an ITEM or CERTIFICATE to be auctioned off the evening of the gala. Attached is a Sponsor Packet and Donation Agreement, a recent press release and a You Tube video of a young surfer with cystic fibrosis. You will be glad to know that over 90 cents on the dollar raised goes directly towards finding a cure for those that suffer from cystic fibrosis.
Thank you so much for your time and consideration. We look forward to your participation. If you have any questions, please contact Monika Gilbert at the Cystic Fibrosis Foundation at or by phone at 714-938-1393.

If you are interested in the event make sure to contact Monika of you can visit the website for more information


Anonymous said...

This is a very interesting article, especially from a medical standpoint - concerning the effects of salt water on health in general. Thank you so much for posting this!

I am not a surfer (maybe one day I'll learn), but I am a free/SCUBA diver - your site is very useful in planning my outings. Thank you again for maintaining such a great site!

Kelsey A.

Emily said...

Hi there,
This is Emily, the girl in the video :). I know i'm many months late, and though I do follow your blog for what's up in the so-cal forcast, I must have missed this post :).

Thank you for posting this and getting the word out about CF and how the surfing industry can be involved. Thanks to everyone that participated, the CF Foundation raised $450,000 that evening, all that money going towards research for a cure. This was our innagural event and I can't wait for next year, and I can't wait to see that cure for me and the many suffering with CF!
Thanks for posting this, and if you read this comment (many months later), I am so grateful for your support in getting the word out :). looking forward to reading your forecasts and enjoying the warm so-cal surf!